Monday 16 June 2014

5 months in...

Apologies for the late posting again. Josh is finding it difficult to sleep in the heat - he is very itchy and still waking up at night. However he is managing to go to school each day.

All of his food has to be cut up very small so he can eat it because he still struggles with opening his mouth. Shedding has decreased quite a bit, his bedding still needs to be washed pretty often as his skin still bleeds and oozes.

There is hope though, he seems to have more good days recently and we are hoping that he will be able to return to football next season. He watched the 1966 world cup game last night and enjoyed it!

Ok, so now for the pictures. This is Josh at the end of last month (22nd May):






After reading this post by Dr. Fukaya we decided to add some topical vitamin D to Josh's face alongside his daily active B vitaimins. This is Josh now:





His skin has improved a lot :)

I am going to continue with the B vitamins and topical vitamin D for now. He still has bad days but his skin seems to heal much quicker afterwards.

Josh's verdict this month: "Definitely getting better!"

I would like to sign out by saying 'Happy Healing' but this type of healing is far from happy and it seems a little silly to say so. So how should we greet fellow Warriors? I would be happy to hear your suggestions!

Take Care!